Substack writing
Peer-reviewed and research publications
Stoianova S, Tammam E, Harrop E. Bringing humanity to data: The scientist, the parent and the doctor. Palliative Medicine. 2026;0(0). https://doi.org/10.1177/02692163261501430
Dosani, S., & Tammam, E. (2025). Maternal Grief-Writing as Transformative Practice. Life Writing, 1–10. https://doi.org/10.1080/14484528.2025.2559821.
Stoianova, S., Williams, T., Sleap, V., Odd, D. E., Garstang, J., Fraser, J., Harrop, E., Fraser, L., Tammam, E., Robertson, E., & Luyt, K. (2025). Infants, children, and young people with life-limiting conditions: Learning from child death reviews on palliative and end of life care provision. Published 10 July 2025. https://doi.org/10.71706/9fc571b4-c78e-4d06-a17f-f2cb2320e68b
Published lived-experience writing and contributions
Tammam, E. (2026). Lived-experience contribution in World Health Organization, Global status report on cancer 2026: The future we choose together. Geneva: World Health Organization. ISBN 978-92-4-012397-7 (electronic); 978-92-4-012398-4 (print).
Tammam, E. (2026). Tears, Tools, and Treasures. Invited guest writing and accompanying artwork concerning lived experience of child loss.
Tammam, E. (2025). Neve's story. In Families' Stories, supporting material accompanying Infants, children, and young people with life-limiting conditions: Learning from child death reviews on palliative and end of life care provision. National Child Mortality Database Programme.
Tammam, E. Family lived-experience contribution in Heart Strings: Stories Shared of Children's Palliative Care, edited by Julia Downing and Lizzie Chambers. International Children's Palliative Care Network.
Tammam, E. (2024). I kept my 10-year-old daughter at home after she died – the decision changed everything. The Telegraph, 5 August 2024.
Research posters
Anderson, A. K., Tammam, E., Harrop, E., Lewin-Taylor, T., & Holland, C. Parent co-production for Southeast Children and Young People Palliative Care regional program. On behalf of the CYP SE PEoLC PPI Group.
Poster at APPM, Neve’s pain
Conference and invited presentations
Tammam, E. (2026). Panel member at Helen & Douglas House’s Research Symposium, October 2026, Lady Margaret Hall, Oxford.
Stoianova, S., & Tammam, E. Bringing Humanity to Data: Co-Producing Insights into Child Deaths. 20th World Congress of the European Association for Palliative Care, Prague.
Tammam, E. (2025). Plenary presentation sharing family experience, Together for Short Lives 2025 Children's Palliative Care Conference: Built to Last: Towards a Strong, Sustainable Future
Tammam, E. (2025). Presentation and panellist contribution, From Bedside to Breakthrough: A Symposium by Helen & Douglas House, 24 September 2025, Magdalen College, Oxford.
Tammam, E. (2026). Panel host/speaker, The Story Changers Summit, 30 September 2026, Regent's University London.
Tammam, E. (2024). Art, words, love, grief [Invited talk]. Wood Festival, Kindling Tent, May 2024.
Tammam, E. Presentation on lived experience and equitable care at the end of life, Paediatric Palliative Care Managed Clinical Network for the BOB region.
Webinars and professional education
Tammam, E. (2024). Pain, look deeper [Webinar contribution]. The Clinical Forum, June 2024. South England Children's Palliative and End of Life Care Strategic Clinical Network Team and Parent Advisory Group.
Tammam, E. (2023). Back to school, children with palliative care needs [Webinar contribution]. The Clinical Forum, October 2023. South England Children's Palliative and End of Life Care Strategic Clinical Network Team and Parent Advisory Group.
Tammam, E. (2026). Lived-experience speaker, ICPCN global campaign launch webinar, International Children’s Palliative Care Network.
Tammam, E. (2026). Lived-experience contributor, webinar on framing and communication in children’s palliative care, National Child Mortality Database / Heard.
Tammam, E. Perspectives on advance care planning [Video series]. Lived-experience contribution.
Tammam, E., & Titherington, E. [Talk/presentation]. Royal Society of Medicine (RSM). Title and date to verify.
Brookes children’s nursing 2024,2025, 2026
Cambridge 2024, 2025, 2026
Media
BBC radio with Emily
Other radio
Tammam, E. (2024). Interview about lived experience of pain and palliative care, World at One, BBC Radio 4, 4 July 2024.
Tammam, E. (2024). A painting to mark a year. Selected for Open Art Exhibition 2024: Representations of People, Museum of Oxfordshire. Judges' Special Recognition Award.
Embedding children’s hospices in the UK’s networked care approach
Published 27 March 2025 by the EAPC Reference Group Children & Young People. It includes a substantial parent-perspective contribution from Emily Tammam about coordinated paediatric palliative care. Her own website includes it under “Writing & Publications.” [kinderpalliatief.nl], [emilytammam.co.uk]
